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A Public Health Perspective on End of Life Care
Edited by Joachim Cohen and Luc Deliens
272 pages
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Black and white line drawings and halftones
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246x171mm
978-0-19-959940-0
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Paperback
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19 January 2012
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- Applies a public health approach to palliative care to show how societies can successfully safeguard a good quality of the end of life for patient populations
- Focuses on population health, rather than clinical interventions or other aspects of individual health
Worldwide, more than 50 million people die each year and it is estimated on the basis of the conditions leading to death that up to 60% of them could benefit from some form of palliative care. It is a public health challenge to ensure that these people can access good palliative or end-of-life care. Pursuing good population health essentially also implies striving for a 'good enough death' and a good quality of care at the end of life. Safeguarding a good quality of the end of life for patient populations for whom it is appropriate requires a public health approach.
In most developed
countries ageing populations that increasingly die from chronic diseases after a prolonged -often degenerative- dying trajectory make up the public health challenges for palliative care. The very large baby boom generation will soon reach old age and can be expected to pose strong demands regarding the circumstances and care at their end of life. Only by applying a public health approach to palliative care (instead of individual patient perspectives), can societies successfully help to organize and plan end-of-life care in accordance with these aspirations.
A Public Health Perspective on End of Life Care presents a synthesis and overview of relevant research and empirical data on the end of life that can bear a basis for a more systematic 'public health of the end
of life'. The book focuses on population health, rather than clinical interventions or other aspects of individual health, and discusses studies using different methodologies (not only epidemiological research). The focus is on the quality of the end-of-life of populations, in particular from social sciences, environmental sciences, and humanities perspectives.Readership: Students in palliative care, public health, medicine, nursing, health services, applied health sciences, sociology, psychology, and other related disciplines, researchers in end-of-life care
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Edited by Joachim Cohen, End-of-life Care Research Group, Vrije Universiteit Brussel, Brussels, Belgium, and Luc Deliens, VU University Medical Center, Department of Public and Occupational Health, EMGO and Institute for Health and Care Research, Amsterdam, the Netherlands Contributors:
Julia Addington-Hall,
Professor of End of Life Care,
Faculty of Health Sciences,
University of Southampton, Southampton, UK
Elba Beas
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life
Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Kevin Brazil
Professor
Department of Clinical Epidemiology and Biostatistics
Division of Palliative Care, Family Medicine,
Faculty of Health Science, McMaster University, and
Director, St. Joseph's Health System Research Network,
Ontario, Canada
Candela Calle
General Manager.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
David Clark
Professor of Medical Sociology
Director
School of Interdisciplinary Studies,
University of Glasgow, Dumfries, Scotland, UK
Chen-Hsiu Chen
Senior Lecturer
Kang-Ning Junior College of Medical Care and Management
Taipei, Taiwan, Republic of China
Joachim Cohen
Postdoctoral Fellow of the Research Foundation - Flanders (FWO), and
Senior Researcher, End-of-Life Care Research Group,
Ghent University & Vrije Universiteit Brussel, Brussels, Belgium
Leopold Curfs
Professor of Learning Disabilities
Department of Clinical Genetics, Maastricht University Medical Centre, and
Director of the Governor Kremers Centre at the Academic Hospital Maastricht, Maastricht University, Maastricht, the Netherlands
Luc Deliens
Professor of Public Health
and Palliative Care,
Director of the End-of-Life Care Research Group
Ghent University & Vrije Universiteit Brussel, Brussels, Belgium, and
Palliative Care Centre of Expertise, EMGO Institute for Health and Care Research
VU University Medical Centre, Amsterdam, the Netherlands
Julia Downing
Honorary Professor,
Makerere University, Kampala, Uganda
Linda Emanuel
Buehler Professor of Medicine and Director,
Buehler Center on Aging, Health & Society, Feinberg School of Medicine, and
Adjunct Professor, Kellogg School of Management,
Northwestern University, Chicago, USA
Jose Espinosa
WHO Collaborating
Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Konrad Fassbender
Assistant Professor, Division of Palliative Care Medicine,
Adjunct assistant professor, School of Public Health,
Fellow of the Institute of Public Economics,
University of Alberta, Edmonton, Canada
Chris Feudtner
Assistant professor of pediatrics
Director, Department of Medical Ethics
Research Director, PACT
Scientific Co-Director, PolicyLab
The Children's Hospital of Philadelphia,
University of Pennsylvania School of Medicine, Philadelphia, USA
Daniel J Fischberg
Medical Director, Pain & Palliative Care Department, The Queen's Medical Center, and
Associate Clinical Professor,
Department of Geriatric Medicine, John A. Burns School of Medicine
University of Hawaii, Honolulu, USA
Xavier Gómez-Batiste
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Mª Pau Gonzalez Olmedo
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Gunn Grande
Reader Palliative Care
School of Nursing, Midwifery & Social Work
The University of Manchester, Manchester, UK
Richard Harding
Reader in Palliative Care
Department of Palliative Care, Policy & Rehabilitation,
Cicely Saunders Institute
King's College London, London, UK
Margaret R Helton
Professor
Department of Family Medicine
University of North Carolina, Chapel Hill, USA
Irene J Higginson
Professor Palliative Care and Policy,
Department of Palliative Care, Policy and Rehabilitation,
King's College London, London, UK, and
Scientific Director, Cicely
Saunders International, London, UK
And WHO Collaborating Centre on Palliative Care for Older People
Kari Hexem
Clinical Research Associate,
Department of General Pediatrics,
Children's Hospital of Philadelphia,
University of Pennsylvania School of Medicine, Philadelphia, USA
Katherine Hunt
Senior Research Fellow
Faculty of Health Sciences,
University of Southampton, Southampton, UK
Amy S. Kelley
Assistant Professor
Brookdale Department of Geriatrics and Palliative Medicine,
Mount Sinai School of Medicine, New York, USA
Allan Kellehear
Professor of Sociology
Department of Social & Policy Sciences
University of Bath, Bath, UK
Jonathan Koffman
Senior Lecturer in Palliative Care
Department of Palliative Care, Policy and Rehabilitation,
Cicely Saunders Institute,
School of Medicine at Guy's, King's and St. Thomas' Hospitals
King's College London, London, United Kingdom
Cristina Lasmarias
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Deepthi Mohankumar,
Post-doctoral Fellow,
Faculty of Nursing,
University of Alberta,
Edmonton, Canada
Marisa Martínez-Muñoz
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
R. Sean Morrison
Hermann Merkin Professor of Palliative Care
Brookdale Department of Geriatrics and Palliative Medicine,
Mount Sinai School of Medicine, New York, USA
Anna Novellas
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Josep Porta
Palliative Care Service.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain
Miel W. Ribbe
Professor in Nursing Home Medicine
Department of Nursing Home Medicine, EMGO Institute for Health and Care Research
VU University Medical Center, Amsterdam, the Netherlands
Judith Rietjens
Assistant Professor
Department of Public Health,
Erasmus MC, Rotterdam, the Netherlands, and
Professor, End-of-life Care Research Group,
Ghent University & Vrije Universiteit Brussel, Brussels, Belgium
Phil D. Sloane
Goodwin Distinguished Professor of Family Medicine, and
Associate Chair, Department of Family Medicine, and
Director of
Geriatric Fellowship Research for the Center for Aging and Health,
University of North Carolina, Chapel Hill, USA
Jan Stjernsward
Chairman
WHO Collaborating Centre for Public Health Palliative Care Programmes / The 'Qualy' End of Life Observatory.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain.
Lindsey Sutherland
Research Assistant
Department of Oncology,
University of Alberta, Edmonton, Canada
Jordi Trelis
Medical Director.
Catalan Institute of Oncology, L'Hospitalet de Llobregat, Spain.
Irene Tuffrey-Wijne
Senior Research Fellow
Division of Population
Health Sciences and Education,
St George's University of London, London, UK
Siew Tzuh Tang
Professor,
School of Nursing,
Chang Gung University, Tao-Yuan, Taiwan, Republic Of China
Lieve Van den Block
Professor, End-of-Life Care Research Group,
Ghent University & Vrije Universiteit Brussel, Brussels, Belgium
Professor of communication and education in general practice, Department of Family Medicine,
Vrije Universiteit Brussel, Brussels, Belgium
Jenny Van der Steen
Senior Researcher
Department of Nursing Home Medicine, and Department of Public and Occupational Health, EMGO Institute for Health and Care
Research
VU University Medical Center, Amsterdam, the Netherlands
Agnes van der Heide
Senior Researcher
Department of Public Health,
Erasmus University, Rotterdam, the Netherlands
Annemieke Wagemans
ID physician, Maasveld, Koraalgroep, and
research fellow, Department of General Practice-Governor Kremers Centre,
Maastricht University, Maastricht, the Netherlands
Kirsten Wentlandt
Research fellow
Department of Psychosocial Oncology and Palliative Care, Princess Margaret Hospital,
University Health Network, Toronto, Canada
Donna M. Wilson
Professor,
Faculty of
Nursing,
University of Alberta, Edmonton, Canada
Camilla Zimmermann
Head, Palliative Care Program, University Health Network, and
Associate Professor of Medicine, Division of Medical Oncology and Haematology, University of Toronto, Toronto, Canada
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"This book should be read by everyone involved in end-of-life care. Hopefully, this will result in a sequel in which policy makers, professionals from the curative sector and politicians answer the call of this volume." - European Journal of Public Health, Oct 2013 "It can be refreshing to read about something, something you may be well acquainted with, when it is viewed from a quite different perspective. This book is about palliative care as a public health issue and is 'concerned with the quality of end-of-life care of populations, not just the individuals within them.'" - IAHPC Newsletter "As a clinical nurse specialist, a hospice nurse for over 20 years, and a nurse educator before that, I was
quite fascinated by this book. Actually, I could not put it down for long. It is technical in parts, but the global information is interesting. I do not know of any book that intermingles end of life, palliative care, public health, and disease trajectories so well. 4 Stars!" - Doody's Reviews "The authors, an impressive team of international researchers, administrators and clinicians working together, argue that it is necessary to have a public health perspective on palliative care to manage the demographic challenges we face, both nationally and globally. This book will be useful for planners of health services at all levels of health care." - Journal of the Norwegian Medical Association "This book is the first of its kind in that it
takes a unique look at the effect death has on modern society. In highlighting the inherent link between palliative and end-of-life care and public health, it starts the ball rolling, identifying a wide range of areas of palliative care that carry a public health message There is overlap in some of the chapters, but, rather than being grating, this acts to refresh what has recently been learned and to firm up ideas that are forming from previous chapters. Overall, this is an excellent book and one that should sit within the canon of palliative care reading." - European Journal of Palliative Care, Feb 2013
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PART I: INTRODUCTION
1: J Cohen & L Deliens: Applying a public health perspective in end-of-life care
PART II: CLINICAL AND SOCIAL CONTEXT OF DEATH AND DYING
2: ST Tang & C-H Chen: Place of death and end-of-life care
3: I Higginson: Circumstances of death and dying
4: A Van der Heide & J Rietjens: End-of-life decisions
5: K Fassbender: Economic and health related consequences of individuals caring for terminally ill cancer patients in Canada
PART III: END-OF-LIFE CARE: PROVISION, ACCESS, AND CHARACTERISTICS
6: Wentlandt K & C Zimmerman: Aggressive treatment and palliative care at the end of life
7: G Grande: Access to palliative care
8: L Emanuel: Communication between patient and caregiver
PART IV: END-OF-LIFE CARE SETTINGS
9: L Van den Block: Palliative care in primary care
10: JT Van der Steen, MR Helton, PD Sloane & MW Ribbe: Palliative care in institutional long-term care settings
11: AS Kelley, DJ Fischberg & RS Morrison: Palliative care in hospitals
PART V: INEQUALITIES AT THE END OF LIFE: UNDERSERVED GROUPS
12: J Addington-Hall & K Hunt: Non-cancer patients
13: K Brazil: Palliative care for the older adult
14: K Hexem & K Feudtner: A public health framework for pediatric palliative and hospice care
15: I Tuffrey-Wijne, A Wagemans & L Curfs: End-of-life care for patients with intellectual disabilities
16: D Wilson & D Mohankumar: End-of-life care for people who live in rural or remote areas versus those who live in urban areas
17: J Koffman: Social inequalities at the end of life
PART VI: END-OF-LIFE CARE POLICIES
18: X Gómez-Batiste, J Espinosa, MP Gonzalez Olmedo, M Martínez-Muñoz, C Lasmarias, A Novellas, E Beas, J Porta, J Trelis, C Calle & J Stjernsward: Design, implementation, and evaluation of palliative care programs and services with a public health who perspective
19: J Downing & R Harding: Public health policy regarding end-of-life care in sub-Saharan Africa
20: D Clark: Palliative care in the global context: understanding policies to support end-of-life care
21: A Kellehear: The importance of family carers in end-of-life care: a public health approach
PART VII: Conclusion
22: L Deliens & J Cohen: Conclusions
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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