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Shared decision-making in health care
Achieving evidence-based patient choice
Second Edition
Edited by Adrian Edwards and Glyn Elwyn
432 pages
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38 black and white line drawings, and 5 black and white photographs
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246x171mm
978-0-19-954627-5
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Paperback
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02 April 2009
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- Practical case studies from actual health care practice, covering both general and specific conditions, offer tangible examples for both patients and doctors
- Practical discussion for clinicians covering skills, competences, teaching, and training exemplifies the practical and specific ways of adopting the ethos and acquiring skills for clinicians, including also working in multi-disciplinary teams
- Theoretical perspectives from several social science disciplines, including psychology, sociology, ethics, and economics, analyse the strengths and weaknesses underlying this approach to health care
- Shows areas where application is growing in new / increasingly important policy areas, such as informed choice and consent, health literacy, and the 'expert patient programmes'
- Documents the current situation and likely future developments, to help plan and deliver policy initiatives
- The first edition of this book was highly commended in the Primary Care category of the BMA Book Awards 2002
New to this edition - Major policy and practice developments in the fields of both evidence-based medicine and patient choice make this a much-needed new edition
- This second edition develops the same five sections as the first, examining the nature of health care, theoretical perspectives, conceptual development, evidence of shared decision-making in practice, and debating potential future developments
- Over a hundred authors from ten countries contribute to this volume, representing the broadening of these issues, and their global impact
- Discussion of 'shared decision-making' as a named concept
When the first edition of this book came out in 2001 (under the title Evidence-based Patient Choice: Inevitable or Impossible?), it examined the emerging themes of patient choice and clinical decision-making, and looked at how these might develop in the future. Since then, these issues have become even more topical. Evidence-based medicine is deeply ingrained in the practice of modern medicine, whilst patient choice is increasingly high on the political agenda. But can the two trends co-exist? 'Shared decision-making' has developed in response to the sometimes uneasy relationship between a patient's right to have input into their treatment options, and a
clinician's responsibility to provide the best evidence-based health care.
Imagine a patient with osteoarthritis of the knee. She and her doctor are considering whether she would benefit from surgery to replace her knee joint. This sort of decision is typical of many in health care where there is more than one reasonable alternative available to the patient and her doctor. These alternatives include surgery, physiotherapy, medication, complementary remedies, and more. What is right for one patient may be different from what is right for another. Clinical information (such as results of x-rays or even patient-reported symptom scores), though necessary, is not sufficient to determine the best treatment. Most importantly, each patient feels differently about the impact
of the illness in their life and the importance of the potential good and bad outcomes of the treatment options. In these situations, the best treatment is the one that reflects what is most important to patients who are well-informed about the options and potential outcomes. The shared decision-making approach helps doctors and patients to decide on the appropriate treatment.
This timely book explores shared decision-making by examining from practical and theoretical perspectives what should be part of the decision-making process, what the benefits and potential difficulties are when it is attempted, and examples of how this is achieved in real health care practice for several health conditions. Finally, it also examines how this type of health care is likely to
become more common place in the future.Readership: This book is aimed at academics in all fields of health care, particularly those involved in evidence-based medicine, patient choice, and shared decision-making. Practising clinicians (doctors, nurses and allied health professionals) will also benefit from learning how and when they can use shared decision-making in daily practice. The book will help consumer/patient groups involved in patient advocacy understand the role of shared decision-making and the part they can play. The book will also have relevance for students undertaking competency-based skills examinations, commercial developers of decision aids, and policy makers.
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Edited by Adrian Edwards, Professor in General Practice, School of Medicine, Cardiff University, UK, and Glyn Elwyn, Research Professor in Primary Care, School of Medicine, Cardiff University, UK Contributors:
Joan Austoker, Director, Cancer Research UK Primary Care Education Research Group, Reader in Public Health and Primary Health Care, Oxford, UK
Alexandra Barratt, Associate Professor of Epidemiology, School of Public Health, University of Sydney, Australia
Michael J. Barry, Massachusetts General Hospital & Harvard Medical School, Boston, USA
Hilda Bastian, German Institute for Quality and
Efficiency in Health Care, Cologne, Germany
Hilary Bekker, Institute of Health Sciences, University of Leeds, UK
Jeff Belkora, University of California, San Francisco, USA
Carol Bennett, University of Ottawa, Ottawa Health Research Institute, Ottawa Hospital, Ontario, Canada
Cathy Charles, McMaster University, Canada
Marla L. Clayman, Center for Communication and Medicine, Division of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois USA; Saint Francis Hospital and Medical Center, Hartford, Connecticut, USA
Nananda Col, Center for Outcomes Research and Evaluation, Maine Medical Center, Portland, USA
Angela Coulter, Picker Institute Europe, King's Mead House, Oxford,
UK
Myfanwy Davies, Research Fellow, Centre for Health Sciences Research, Cardiff University, UK
Marie-Anne Durand, Dept of Primary Care & Public Health, Centre for Health Sciences Research, Cardiff University, UK
Karen Eden, Oregon Health and Science University, USA
Adrian Edwards, Professor in General Practice, School of Medicine, Cardiff University, UK
Michelle Edwards, Dept of Primary Care & Public Health, Centre for Health Sciences Research, Cardiff University, UK
Benjamin Elwyn, Philosophy graduate, Department of Primary Care and Public Health, School of Medicine, Cardiff University, UK
Glyn Elwyn, Professor, Department of Primary Care and Public Health, School of Medicine, Cardiff University, UK
Vikki Entwistle, Universities of Dundee and St. Andrews, UK
Rhodri Evans, Dept of Primary Care and Public Health, Cardiff University, UK
Deb Feldman-Stewart, Associate Professor, Dept of Oncology, Division of Cancer Care and Epidemiology, Cancer Research Institute, Queen's University, Kingston, Ontario, Canada
Dominick Frosch, Assistant Professor, Division of General Internal Medicine & Health Services Research, UCLA Department of Medicine, Los Angeles, USA
Clara L. Gaff, Genetic Health Services Victoria, Departments of Medicine and Paediatrics, University of Melbourne, Australia
Amiram Gafni, McMaster University, Canada
William Godolphin, University of British Columbia, Canada
Ian D. Graham, Associate
Professor, School of Nursing, University of Ottawa; Senior Social Scientist, Ottawa Health Research Institute, Canada
Karine Gravel, France Legare, Department of Family Medicine, Université Laval, Centre Hospitalier Universitaire de Québec, Hôpital St-François d'Assise10 Rue Espinay, Québec, Canada
Martin Härter, Department of Psychiatry and Psychotherapy, Section of Clinical Epidemiology and Health Services Research, University of Freiburg, Germany
Sophie Hill, Cochrane Consumers & Communication Review Group, School of Public Health, La Trobe University, Victoria, Australia
Søren Holm, Professor, Cardiff Law School, Cardiff University, UK
Margaret Holmes-Rovner, Professor, Health Services Research, Michigan State, University College
of Human Medicine, USA
Donald W. Kemper, Healthwise, Idaho, USA
Anne Kennedy, Manchester University, UK
Sara Khangura, University of Ottawa, Ottawa Health Research Institute, Ottawa Hospital, Ottawa, Ontario, Canada
J. Kievit, Department of Medical Decision Making, Leiden University Medical Center, Leiden, Nethelands
Paul Kinnersley, Cardiff University, UK
Marco Knelangen, German Institute for Quality and Efficiency in Health Care, Cologne, Germany
Marije S. Koelewijn-van Loon, Department of General Practice & Centre for Quality of Care Research, Maastricht University, Netherlands
Sascha Köpke, University of Hamburg, Germany
Jennifer Kryworuchko, Faculty of Health Sciences, School of Nursing,
University of Ottawa, Ottawa, Canada
Julie Leask, University of Sydney, Australia
France Legare, Department of Family Medicine, Université Laval, Centre Hospitalier Universitaire de Québec, Hôpital St-François d'Assise10 Rue Espinay, Québec, Canada
Matthias Lenz, University of Hamburg, Germany
Carmen Lewis, University of North Carolina Chapel Hill, Department of Medicine, Sheps Center for Health Services Research, USA
Hilary A. Llewellyn-Thomas, Center for the Evaluative Clinical Sciences, Department of Community & Family Medicine, Dartmouth Medical School, USA
Gregory Makoul, Center for Communication and Medicine, Division of General Internal Medicine, Northwestern University Feinberg School of Medicine, Chicago, Illinois
USA; Saint Francis Hospital and Medical Center, Hartford, USA
Theresa M. Marteau, King's College London, Psychology & Genetics Research Group, Department of Psychology (at Guy's), Institute of Psychiatry, Guy's Campus, London, UK
Carl May, Health Technology & Human Relations, Institute of Health & Society, Newcastle University, UK
Dennis J. Mazur, Professor, Department of Veterans Affairs Medical Center, Portland, Oregon, USA
Bettina Meiser, Psychosocial Research Group, Prince of Wales Hospital and Prince of Wales Clinical School, The University of New South Wales, Sydney, Australia
Talya Miron-Shatz, Research scholar, Center for Health and Wellbeing, Princeton University, USA
Alan Montgomery, BRTC Director and Senior
Lecturer, University of Bristol, UK
Albert G. Mulley, Massachusetts General Hospital, Harvard Medical School, USA
Elizabeth Murray, University College London, UK
Ingrid Mühlhauser, University of Hamburg, Germany
Madeleine J. Murtagh, Newcastle University, UK
Annette M. O'Connor, Professor and Tier 1 Canada Research Chair, University of Ottawa and Ottawa Health Research Institute, Clinical Epidemiology Program, Ottawa, Ontario, Canada
Michael Pignone, University of North Carolina Chapel Hill, Department of Medicine, Sheps Center for Health Services Research, USA
Christopher Price, Cardiff University, UK
Joanne Protheroe, Manchester University, UK
Tim Rapley, Health Technology & Human
Relations, Institute of Health & Society, Newcastle University, UK
Stéphane Ratté, Doctorale candidate in epidemiology, Department of Family Medicine, Université Laval, Centre Hospitalier Universitaire de Québec, Hôpital St-François d'Assise10 Rue Espinay, Québec, Canada
Anne Rogers, University of Manchester, UK
David Rovner, Professor Emeritus, Endocrinology, Michigan State University, College of Human Medicine, East Lansing, USA
Anton Saarimaki, University of Ottawa, Ottawa Health Research Institute, Canada
Lisa M. Schwartz, The Veterans Affairs Outcomes Group, White River Junction, VT and the Center for Medicine, the Media and the Public at the Dartmouth Institute for Health Policy and Clinical Practice, USA
Karen R.
Sepucha, Massachusetts General Hospital, Harvard Medical School, USA
Daniela Simon, Department of Psychiatry and Psychotherapy, Section of Clinical Epidemiology and Health Services Research, University of Freiburg, Germany
Ivar Sonbo Kristiansen, Department of General Practice, University of South Denmark, Odense, Denmark
Dawn Stacey, Population Health PhD Program and Research Associate, Ottawa Health Research Institute, Ottawa Hospital, Canada
Anne M. Stiggelbout, Department of Medical Decision Making, Leiden University Medical Center, Leiden, The Netherlands
Richard Thomson, School of Population and Health Sciences, Medical School, Framlington Place, Newcastle upon Tyne, UK
Hazel Thornton, Honorary Visiting Fellow,
Department of Health Sciences, University of Leicester, UK
Angela Towle, University of British Columbia, Canada
Lyndal Trevena, University of Sydney, Australia
Trudy van der Wiejden, Department of General Practice & Centre for Quality of Care Research, Maastricht University, The Netherlands
Ben van Steenkiste, Department of General Practice & Centre for Quality of Care Research, Maastricht University, The Netherlands
Bob Volk, Associate Professor, Vice Chair for Research, Department of Family and Community Medicine, Baylor College of Medicine, Houston, Texas, USA
H. Gilbert Welch, The Veterans Affairs Outcomes Group, White River Junction, VT and the Center for Medicine, the Media and the Public at the Dartmouth Institute for
Health Policy and Clinical Practice, Hanover, NH, USA
Celia E. Wills, Department of Psychiatry and Psychotherapy, Section of Clinical Epidemiology and Health Services Research, University of Freiburg, Germany
Anna Winterbottom, Institute of Psychological Sciences, University of Leeds, UK
Steven Woloshin, The Veterans Affairs Outcomes Group, White River Junction, VT and the Center for Medicine, the Media and the Public at the Dartmouth Institute for Health Policy and Clinical Practice, USA
Beate Zschorlich, German Institute for Quality and Efficiency in Health Care, Cologne, Germany
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Review(s) from previous edition
"This well designed book is clear, accessible and, as one would expect from the title, evidence-based . . . I think this is a great book that challenges clinicians and others working in health care to develop and adapt to a rapidly changing and demanding world. Can we do it with support from patients? The answer is in the book!
- Family Practice, Vol 19, No 3
"Before the last chapter, evidence-based patient choice could still be an option. After it, there's simply no argument.
" - EBPC on Bandolier
"This impressive edited book . . . is truly excellent . . . essential reading for all those interested in patient involvement and evidence-based health-care.
" - Health Expectations, 5
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1: Adrian Edwards & Glyn Elwyn: Shared decision-making in healthcare: achieving evidence-based patient choice
2: Margaret Holmes-Rovner & David Rovner: International collaboration in promoting shared decision making: a history and prospects
3: Vikki Entwistle: Patient involvement in decision-making: the importance of a broad conceptualisation
4: France Légaré & Dawn Stacey: Shared decision making: the implications for healthcare teams and practice
5: Dawn Stacey, France Legare & Jennifer Kryworuchko: Evidence-based healthcare decision making: roles for health professionals
6: Hazel Thornton: Evidence-based health care: what roles for patients?
7: Hilary L. Bekker: Using decision-making theory to inform clinical practice
8: Tim Rapley & Carl May: Evidence and risk: the sociology of health care grappling with knowledge and uncertainty
9: Søren Holm & Myfanwy Davies: Ethical issues around evidence-based patient choice and shared decision-making
10: Ivar Sonbo Kristiansen: The economics of shared decision-making
11: Amiram Gafni & Cathy Charles: The physician-patient encounter: an agency relationship?
12: Madeleine J. Murtagh: Decision-making, power and the doctor patient relationship
13: Theresa M. Marteau: Informed choice: a construct in search of a name
14: Anne Rogers: Developing expert patients
15: Michelle Edwards, Sophie Hill & Adrian Edwards: Health literacy - achieving consumer 'empowerment' in health care decisions
16: Marla L. Clayman & Gregory Makoul: Conceptual variation and iteration in SDM: the need for clarity
17: Glyn Elwyn & Cathy Charles: Shared decision-making: from conceptual models to implementation in clinical practice
18: Hilary Llewellyn-Thomas: Values clarification
19: Adrian Edwards: Risk communication - making evidence part of patient choices
20: Glyn Elwyn, Benjamin Elwyn & Talya Miron-Shatz: Measuring 'decision quality': irresolvable difficulties and an alternative proposal
21: Karen R. Sepucha & Albert G. Mulley: A practical approach to measuring the quality of preference-sensitive decisions
22: Angela Coulter: What's happening around the world?
23: Dennis J. Mazur: Medico-legal aspects of evidence-based choice and shared decision-making
24: Paul Kinnersley & Adrian Edwards: Helping consumers with their information needs
25: Lisa M. Schwartz, Steven Woloshin & H. Gilbert Welch: Helping consumers to know their chances
26: Hilda Bastian, Marco Knelangen & Beate Zschorlich: Making information available to patients and the general public: the example of 'Informed Health Online' from Germany
27: Annette M. O'Connor & Adrian Edwards: The role of decision aids in promoting evidence-based patient choice
28: Dawn Stacey, Carol Bennett, Anton Saarimaki, Sara Khangura, Karen Eden & Nananda Col: How effective are patient decision aids?
29: Marie-Anne Durand & Glyn Elwyn: Examining the theoretical foundation of decision support technologies
30: Anna Winterbottom & Hilary Bekker: Should patient stories be used in decision aids?
31: Elizabeth Murray: The role of internet-delivered interventions in self-care
32: Richard Thomson: Decision analysis - utility for everyday use?
33: Glyn Elwyn & Annette O'Connor: The International Patient Decision Aids Standards (IPDAS) Collaboration: the checklist, the instrument and next steps
34: Hilary Llewellyn-Thomas: The decision research lab
35: Alan Montgomery: Decision aids for preventing cardiovascular disease
36: Sascha Köpke & Ingrid Mühlhauser: Decision aids in multiple sclerosis
37: Anne Kennedy: Decision aids / shared decision-making in Inflammatory Bowel Disease
38: Daniela Simon, Celia E. Wills & Martin Härter: Shared decision-making in mental health
39: Joanne Protheroe: Decision aids and shared decision-making in menorrhagia
40: Matthias Lenz & Ingrid Mühlhauser: Decision aids in diabetes
41: Jeff Belkora: Promoting critical reflection in breast cancer decision-making
42: Anne M. Stiggelbout & J. Kievit: Aneurysms of the abdominal aorta
43: Rhodri Evans: From leaflets to edutainment: the evolution of PSA decision support tools
44: Michael J. Barry: Decision support in the treatment of prostate conditions
45: Alexandra Barratt & Joan Austoker: Decision aids and shared decision-making in mammography screening
46: Carmen Lewis & Michael Pignone: Decision aids to promote shared decision-making for colorectal cancer screening
47: Trudy van der Weijden, Ben van Steenkiste & Marije S. Koelewijn-van Loon: Shared decision-making in cardiovascular risk management: experiences and challenges
48: Lyndal Trevena & Julie Leask: Decision aids for MMR vaccination
49: Clara L. Gaff & Bettina Meiser: Supporting decisions in clinical genetics
50: Christopher Price: A Devils' Advocate: do patients really want shared decision-making?
51: France Légaré, Stéphane Ratté, Karine Gravel & Ian D. Graham: Barriers and facilitators to implementation of shared decision making
52: Carl May, France Légaré, Trudy van der Wiejden & Glyn Elwyn: Understanding factors that retard the normalization of decision-support technologies
53: Angela Towle & William Godolphin,: Education and training of health care professionals
54: Glyn Elwyn, Annette O'Connor, Dominick Frosch, Bob Volk & Deb Feldman-Stewart: Decision aids and beyond: the next decade of decision support technologies...
55: Donald W. Kemper: Information therapy: tomorrow's promise is happening today - an example from the commercial sector
56: Glyn Elwyn & Adrian Edwards: "It's what we do around here": shared decision-making as a future organisational competence
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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