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Supportive care for the person with dementia
Edited by Julian Hughes, Mari Lloyd-Williams, and Greg Sachs
336 pages
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numerous tables and figures
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246x171mm
978-0-19-955413-3
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Hardback
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03 December 2009
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- Contains the views of both carers and of a person with dementia
- Contains a broad perspective, looking at a variety of different types of dementia and includes perspectives from different countries, including from developing countries
- Moves through a variety of different perspectives on dementia, reflecting physical, psychological, social and spiritual concerns
Supportive care can be thought of as an extension of palliative care so that the person with dementia receives good quality, holistic care that makes no distinctions between the dichotomies of care and cure from the time of diagnosis until, and beyond, death. It recognizes the need for an inter-disciplinary approach and for continuity of care. Supportive care in dementia must, therefore, be broad in its scope and application.
Supportive Care for the person with dementia provides just such a broad and full perspective, drawing upon the experience and expertise of a
wide range of internationally-based professionals to outline a model of supportive care that will provide good quality and holistic care for people with dementia. Making use of real-life reports from both patients and carers to help readers fully understand the reality of dementia, the book examines the key principles that guide the practice of supportive care. It looks at how supportive care can be used, and specific benefits a care model of this type can bring to the complex problems that are frequently encountered when treating this condition.
It is an ideal resource for all clinicians who are part of an interdisciplinary team caring for sufferers with this debilitating illness.Readership:
Palliative care physicians, geriatricians, old age psychiatrists, neurologists, general practitioners, psychiatric nurses, social workers, physiotherapists, speech and language therapists, and occupational therapists.
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Edited by Julian Hughes, Consultant in Old Age Psychiatry and Honorary Professor of Philosophy of Ageing in Northumbria Healthcare NHS Foundation Trust and the Institute for Ageing and Health, Newcastle University, UK, Mari Lloyd-Williams, Professor and Director of Academic Palliative and Supportive Care, University of Liverpool, UK, and Greg Sachs, Professor of Medicine and Chief, Division of General Internal Medicine and Geriatrics, Department of Medicine, Indiana University School of Medicine and Scientist, IU Center for Aging Research and Regenstrief Institute, Inc., USA Contributors:
Dag Aarsland,
Professor of geriatric medicine, University of Bergen and Professor of old age psychiatry, King's College, London, UK
Kate Allan, Clinical psychologist
Clive Baldwin, Senior lecturer in the Bradford Dementia Group, Bradford, UK
Clive Ballard, Professor of age-related diseases, King's College London and the Institute of Psychiatry, and Director of research for the Alzheimer's Society, UK
Bob Barber, Consultant and honorary clinical senior lecturer in old age psychiatry, Newcastle upon Tyne, UK
Belinda Bilney, Senior physiotherapist and project manager, Ballarat Health Services, Victoria, Australia
Mary Ann Cohen, Clinical professor of psychiatry, Mount Sinai School of Medicine, USA
Helen Cooper, former GP,
Newcastle upon Tyne, UK
Monica Crugel, Specialist registrar in old age psychiatry, Greenwich Older People's Services, UK
Wim Dekkers, Associate professor of philosophy of medicine and Senior researcher, Radboud University Nijmegen Medical Centre, the Netherlands
Murna Downs, Professor of dementia studies and Head of the Bradford Dementia Group, University of Bradford, UK,
Gillie Evans, Principal in general practice, Jenner Health Centre, Peterborough, UK
Jacquelyn Frank, Associate professor, University of Indianapolis, Indiana, USA
Katherine Froggatt, International Observatory on End of Life Care, Lancaster University, UK
Muriel Gillick, Geriatrician and palliative care specialist, Harvard Vanguard Medical
Associates and Clinical Professor, Department of Ambulatory Care and Prevention, Harvard Medical School, USA
Philip Hardman, Professional and clinical lead for nursing within older adult services, Manchester Mental Health and Social Care Trust, UK
Cees Hertogh, Professor in Geriatric Ethics,EMGO Institute for Health and Care Research of the VU Universitu Medical Center, Amsterdam, The Netherlands
Julian Hughes, Consultant in Old Age Psychiatry and Honorary Professor of Philosophy of Ageing, Northumbria Healthcare NHS Trust, UK
David Jolley, Consultant in old age psychiatry, Tameside, and honorary reader, Manchester University Personal Social Services Research Unit, UK
Alice Jordan, Specialist registrar in palliative medicine,
Newcastle upon Tyne, UK
John Keady, Professor of older people's mental health nursing, School of Nursing, Midwifery and Social Work, Manchester University and GMW Mental Health NHS Foundation Trust, UK
John Killick, Writer in residence, Alzheimer Scotland, UK
Mari Lloyd-Williams, Professor of palliative and supportive care, University of Liverpool, UK, and Honorary consultant in palliative medicine, Royal Liverpool University Hospital and Marie Curie Hospice, UK
Jill Manthorpe, Professor of social work, King's College London, UK, and Director of the Social Care Workforce Research Unit
Meg Morris, Professor and head of the School of Physiotherapy, University of Melbourne, Australia
Louise Robinson, GP and Professor of
Primary Care and Ageing, Newcastle University, UK
Deborah Parker, Associate professor and acting director, UQ/Blue Care Research and Practice Development Centre and acting director, Australian Centre for Evidence Based Community Care, Australia
Barbara Pointon, International campaigner on behalf of people with dementia and their carers
Steven Sabat, Professor of psychology, Georgetown University, Washington, D.C., USA
Greg Sachs, Professor of medicine, Indiana University, USA, and investigator in the IU Center for Aging Research of the Regenstrief Institute
Liz Sampson, Old age psychiatrist and senior lecturer in psychiatric and supportive care of the elderly, Marie Curie Palliative Care Research Unit, University College London,
UK
Stephen Sapp, Professor and chair of religious studies, University of Miami, USA
Charles Schwartz, Internist and psychiatrist, educator, and associate professor, Albert Einstein College of Medicine, USA
Sivaraman Shaji, Chief psychiatrist, Bethsada Hospital, Perumbavoor, Kerala, India
Joseph Shega, Geriatrician and hospice and palliative care physician, University of Chicago, USA
Joyce Simard, Geriatric consultant, Florida, USA, and in Prague, Czech Republic
Philip Sloane, Elizabeth and Oscar Goodwin Distinguished Professor of Family Medicine, University of North Carolina, Chapel Hill, USA
Graham Stokes, Consultant clinical psychologist and head of mental health, Bupa Care Services, UK
Adrian Treloar, Consultant and senior lecturer in old age psychiatry, London, UK
Ladislav Volicer, Courtesy full professor, University of South Florida, USA, and visiting professor, Charles University, Prague
Daphne Wallace, retired psychiatrist (and psychotherapist) for older people
Karen Watchman, Research fellow, Centre for Research on Families and Relationships, University of Edinburgh, UK
Heather Wilkinson, Co-director of the Centre for Research on Families and Relationships and the research director for the School of Health in Social Science, University of Edinburgh, UK
Sheryl Zimmerman, Professor and director of aging research, School of Social Work, and co-director, program on aging, Sheps Center for Health Services
Research, University of North Carolina, USA
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"If your work involves significant numbers of people with dementia then this book, which is clinically very practical, will provide you with support and a lot to reflect upon as to how the care you deliver might be improved." - Roger Woodruff "Overall, I found this book comprehensive and balanced, and would recommend it as a general reference read for healthcare professionals from a primary care or palliative care background" - European Journal of Palliative Care
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1: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: Characterizing care
2: David Jolley: An introduction to the dementias: a clinical view
3: Daphne Wallace: The view of the person with dementia
4: Barbara Pointon: The view of the family carer
5: Joseph W. Shega and Greg A. Sachs: Offering supportive care in dementia: reflections on the PEACE programme
6: Bob Barber and Helen Cooper: Services for younger adults with dementia
7: Belinda Bilney and Meg E. Morris: Huntington's disease and dementia
8: Mary Ann Cohen and Charles E. Schwartz: Patients with HIV-associated dementia
9: Heather Wilkinson and Karen Watchman: Down's syndrome and dementia: a framework for practice to support people with Down's syndrome and dementia living in generic care homes
10: Sivaraman Shaji: Dementia care in developing countries
11: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: Ingredients and issues in supportive care for people with dementia: summarizing from models of care
12: Clive Ballard and Dag Aarsland: Pharmacological management of neuropsychiatric symptoms in people with dementia
13: Elizabeth L. Sampson: Hospital admissions in dementia
14: Alice Jordan and Mari Lloyd-Williams: Distress and pain in dementia
15: Gillie E. Evans and Louise Robinson: The role of the family doctor in supportive care for people with dementia
16: John Keady and Philip Hardman: Community mental health nursing and supportive care
17: Graham Stokes: From psychological interventions to a psychology of dementia
18: Jill Manthorpe: Supportive care: social care and social work approaches
19: Katherine Froggatt and Deborah Parker: Care homes and long-term care for people with dementia
20: Philip D. Sloane and Sheryl Zimmerman: Assisted living programmes providing supportive care for dementia
21: Stephen Sapp: Spiritual care of people with dementia and their carers
22: Jacquelyn Frank: Anticipatory and disenfranchised grief among dementia family caregivers: helping spouse and adult/child caregivers to cope
23: Kate Allan and John Killick: Communicating with people with dementia
24: Steven R. Sabat: Maintaining the self in dementia
25: Murna Downs: Person-centred care as supportive care
26: Clive Baldwin: Narrative, supportive care, and dementia: a preliminary exploration
27: Wim Dekkers: Persons with severe dementia and the notion of bodily autonomy
28: Muriel R. Gillick: Advance care planning: an American view
29: Cees Hertogh: Advance care planning and palliative care in dementia: a view from the Netherlands
30: Adrian Treloar and Monica Crugel: Living and dying at home with dementia
31: Joyce Simard and Ladislav Volicer: Namaste care and dying in institutional settings
32: Julian C. Hughes, Mari Lloyd-Williams, and Greg A. Sachs: The principles and practice of supportive care in dementia
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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