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Commended in the Medicine category of the 2007 BMA Medical Book Competition
Palliative Care in Amyotrophic Lateral Sclerosis
From diagnosis to bereavement
Second Edition
Edited by David Oliver, Gian Domenico Borasio, and Declan Walsh
368 pages
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22 black and white line illustrations and photographs
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234x156mm
978-0-19-857048-6
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Paperback
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09 November 2006
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- Essential guide for health professionals involved in the care of patients with ALS
- Evidence-based and referenced throughout
- International contributors provide a wide perspective on this niche area of palliative care
- Includes personal experiences of this harrowing disease
- Addresses the needs of both the patient and the carer
New to this edition - New chapters on spiritual care, nursing aspects of care, decision making, and ethical issues.
- This edition has increasing focus on ALS as a long term disease; it deals not just with the terminal phase, but covers all aspects of symptomatic treatment right from the point of diagnosis.
- Both the evidence-base and available literature for palliative care as offered to ALS patients has increased over recent years, and this new edition includes these developments.
Amytrophic Lateral Sclerosis (or motor neurone disease) is a rare disease but one that can cause profound suffering for both the patient and their family. Whilst new treatments for ALS are being developed, these are not curative and offer only the potential to slow its progression. Palliative care must therefore be integral to the clinical approach to the disease. Palliative Care in Amyotrophic Lateral Sclerosis: From diagnosis to bereavement reflects the wide scope of this care; it must cover not just the terminal phase, but support the
patient and their family from the onset of the disease.
Both the multidisciplinary palliative care team and the neurology team are essential in providing a high standard of care and allowing quality of life (both patient and carer) to be maintained. Clear guidelines are provided to address care throughout the disease process. Control of symptoms is covered alongside the psychosocial care of patients and their families, culminating in discussion of bereavement. The experience of patients and families is considered and case studies are provided to show the practical application of the theoretical knowledge. Different models of care are explored, and this new edition utilises the increase in both the evidence-base and available literature on the subject.
Additional chapters on nursing, spiritual care, decision making, and ethical issues surrounding end of life care ensure that this new edition remains the essential guide to palliative care in ALS.Readership: This book will be of interest to the entire multidisciplinary palliative care team involved in the care of a patient with ALS, including doctors, nurses, allied health professionals, psychologists, bereavement counsellors, and social workers. Neurologists and those involved in the neurology team will also find the book invaluable, whilst it will prove an essential reference to the General Practitioner supporting an ALS patient.
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Edited by David Oliver, Consultant Physician in Palliative Medicine, Wisdom Hospice; Honorary Senior Lecturer at the Kent Institute of Medicine and Health Sciences, University of Kent, UK, Gian Domenico Borasio, Professor and Acting Chairman, Interdisciplinary Center for Palliative Medicine ; Head, Motor Neurone Disease Research Group, Department of Neurology, University of Munich, Germany, and Declan Walsh, Professor and Director, The Harry R Horvitz Center for Palliative Medicine, Cleveland Clinic, USA Contributors:
Gian Domenico Borasio, Interdisciplinary Centre for Palliative Medicine Head, Motor Neurone
Disease Research Group, Department of Neurology, University of Munich, Germany
Linda Centers, OTR/L, Eastern State Hospital, Kentucky, USA
Lauren Elman, Penn Neurological Institute, Philadelphia, USA
Dallas Forshew, ALS Center at UCSF, San Francisco, USA
Donal Gallagher, Wisdom Hospice, Kent, UK
Alison Garrett, Physiotherapy Department, Kings College Hospital, London, UK
Deborah Gelinas, Forbes Norris MDA/ALS Center, California Pacific Medical Center, San Francisco, USA; Nashoba Valley Medical Center, Ayer, USA
Laura Goldstein, Department of Psychology, Institute of Psychiatry, London, UK
Ulrike Hammerbeck, Motor Nerve Clinic, Institute of Psychiatry, London, UK
Phil Hankins, ALS Patient
(deceased)
Amanda Harris, Wisdom Hospice, Kent, UK
Wendy Johnston, University of Alberta, Canada
Jos Kerkvliet, Disablement Services Centre, Medway Maritime Hospital, Kent, UK
Chris Kingsnorth, Country Services, Independent Living Centre of WA, Nedlands, Western Australia, Australia
Robert Lambert, the Pastoral Service, McGill University Health Centre, Montreal, Canada
Rebecca Lyall, Kings College Hospital, London, UK
Leo McClusky, Penn Neurological Institute , Philadelphia, USA
Ann McMurray, Wisdom Hospice, Kent, UK
Maryanne McPhee, Speech Pathology Department, Bethlehem Healthcare, South Caulfield, Victoria, Australia
Barbara Monroe, St Christopher's Hospice, London, UK
David Oliver, Wisdom Hospice and Kent Institute of Medicine and Health Sciences, University of Kent, UK
Dieter E Pongratz, Friedrich-Baur Institute, Ludwig Maximilians University, Munich, Germany
Mario Prosiegel, Neurologisches Krankenhaus München (NKM), Munich, Germany
Amanda Scott, Speech Pathology Department, The Alfred, Prahran, Victoria, Australia
Christopher Shaw, Department of Neurology, Institute of Psychiatry, London, UK
Richard Sloan, Joseph Weld Hospice, Dorchester, UK
Nigel Sykes, St Christopher's Hospice, London, UK
Raymond Voltz, Department of Neuroimmunology, Ludwig-Maximilians University, Munich, Germany
Edith Wagner-Sonntag, Neurologisches Krankenhaus München, München, Germany
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"...an excellent resource for any health care professional who is involved in the care of patients with ALS. For those of us who see patients with ALS relatively infrequently, access to a reference such as this is invaluable, which makes this book a must for the library shelf of any palliative care unit managing these patients." - Roger Woodruff "A book everyone connected in any way with MND, should read." - Motor Neurone Disease Magazine, "This book makes and essential reading for Palliative care physicians, Palliative care nurses and GPs involved in care ALS. Although this book is written on the subject of palliative care in ALS sclerosis however, good practices can extrapolated to palliative care of
other neurological conditions." - BMA Medical Book Competition 2007 "This book is well written and thorough. I am not aware of another book that provides such a comprehensive treatment of the palliative aspects of ALS in a way that the clinician can use it often...other healthcare providers who are involved in the care of ALS patients [should] read this book." - Doody's Notes
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1: Christopher Shaw: Amyotrophic lateral sclerosis/motor neurone disease
2: David Oliver: Palliative care
3a: Richard Sloan, Dieter E Pongratz & Gian Domenico Borasio: Communication: breaking bad news
3b: Wendy Johnston: Communication: decision making
3c: Gian Domenico Borasio & Raymond Voltz: Communication: advance directives
4a: Rebecca Lyall & Deborah Gelinas: Control of symptoms - dyspnoea and respiratory
4b: Edith Wagner-Sonntag & Mario Prosiegel: Control of symptoms - dysphagia
4c: Laura Goldstein: Control of symptoms - cognitive dysfunction
4d: Gian Domenico Borasio & David Oliver: Control of symptoms - other symptoms (including depression)
5: Donal Gallagher & Barbara Monroe: Psychosocial care
6: Robert Lambert: Spiritual care
7a: Ulrike Hammerbeck & Alison Garrett: Multidisciplinary care - physiotherapy
7b: Chris Kingsnorth: Multidisciplinary care - occupational therapy
7c: Amanda Scott & Maryanne McPhee: Multidisciplinary care - speech and language therapy
7d: Jos Kerkvliet: Multidisciplinary care - the psychologist
7e: Dallas Forshew: Multidisciplinary care - nursing care
8: David Oliver: International aspects of care
9a: Leo McClusky & Lauren Elman: End of life care - ethical issues
9b: Nigel Sykes: End of life care
10: Ann McMurray & Amanda Harris: Bereavement
11a: Linda Centers: Personal experiences: one day at a time - the experience of an ALS caregiver
11b: Phil Hankins: Personal experiences: amyotrophic lateral sclerosis and how it affects my life
Appendix 1 - Suppliers
Appendix 2 - Websites
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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