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Death, Dying, and Social Differences
Second Edition
Edited by David Oliviere, Barbara Monroe, and Sheila Payne
240 pages
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6 black and white line drawings
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234x156mm
978-0-19-959929-5
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Paperback
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15 September 2011
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- Contains contributions from experienced clinicians and practitioners in their field
- Truly international perspectives mean that this book is applicable to a wide range of health and social care systems
- The book is in 2 parts: the first part containins eight chapters on analysis of the 'context', whilst the second part addresses specific issues relating to particular groups and communities
- Contains a foreword by Professor Lukas Radbruch, President of the European Association for Palliative Care, Germany, and an afterword by Professor Mike Richards, National Clinical Director for Cancer and End of Life Care, UK
New to this edition - 11 new chapters, on topics such as the emergence of new forms of dying in contemporary societies, communication, information and support, dying as a teenager or young person, substance abusers, people with dementia, and homeless people, amongst others
- All remaining chapters have undergone major revisions and been updated
Society has become increasingly diverse; multi-cultural, multi-faith and wide ranging in family structures. The wealthier are healthier and social inequalities are more pronounced. Respecting and working with the range of 'differences' among service users, families and communities in health and social care with ill, dying and bereaved people is a neglected area in the literature. As the principles of palliative and end of life care increasingly permeate the mainstream of health and social care services, it is important that professionals are sensitive and respond to the differing needs of individuals from diverse socio-economic backgrounds,
ethnicities, beliefs, abilities and sexual orientations, as well as to the different contexts and social environments in which people live and die.
This book explores what underpins inequality, disadvantage and injustice in access to good end of life care. Increasingly clinicians, policy planners, and academics are concerned about inequity in service provision. Internationally, there is an increasing focus and sense of urgency both on delivering good care in all settings regardless of diagnosis, and on better meeting the needs of vulnerable and disadvantaged groups.
National initiatives emphasise the importance of resolving disparities in care and harnessing empowered user voices to drive change. This newly expanded, fully revised second
edition, with 11 new chapters, provides a comprehensive analysis of discrimination, difference and disadvantage in end of life care, and offers practical guidance for all who seek to support the equitable provision of good end of life care.Readership: Doctors and nurses in hospices and hospital palliative care teams, as well as policy makers and academic departments in nursing, medicine, and social work.
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Edited by David Oliviere, Director of Education and Training, St Christopher's Hospice, Sydenham, London; Visiting Professor, Middlesex University, London, UK, Barbara Monroe, Chief Executive, St Christopher's Hospice, Sydenham, London; Honorary Professor, International Observatory on End of Life Care, Lancaster University, Lancaster, UK, and Sheila Payne, Director of the International Observatory on End of Life Care, and Help the Hospices Chair in Hospice Studies, Lancaster University, Lancaster; Director of the Cancer Experiences Collaborative, UK David trained at Nottingham University in social administration and social work. With a background in psychiatric
social work and management in the personal social services, David was involved with Pilgrim's Hospice, Canterbury, before joining the North London Hospice as Director of Social Work. Subsequently David worked as Community Care Advisor for ethnic minorities and refugees, LB Enfield, and more recently as Macmillan Principal Lecturer in Palliative Care at Middlesex University, whilst practising at the Macmillan Support Team at Barnet Hospital.
David has spoken widely internationally. His special interests include user involvement, culture and ethnicity, work with families, staff stress and teaching skills. He is Visiting Professor at the School of Health and Social Sciences, Middlesex University.
Barbara has been a social worker for over 30 years. She joined St Christopher's Hospice in 1987 and became Chief Executive in 2000. She is founder and Director of the Candle children's bereavement project at St Christopher's and was Chair of the national Childhood Bereavement Network for eight years. She is Module Leader on the MSc in Palliative Care and Policy run jointly by St Christopher's and King's College London. Barbara is a well-known speaker and lecturer and has delivered training programmes across the world. She has written extensively about psychological and social aspects of palliative care and sits on a variety of national committees supporting the development of end of life care. Barbara is an Honorary Professor at the International Observatory on End of Life Care
at Lancaster University and has a long term interest in how we achieve 'good enough' end of life care for all. She was appointed Dame Commander of the Order of the British Empire in the Queen's Birthday Honours List
Sheila Payne is a health psychologist with a background in nursing. She holds honorary visiting chairs at Monash University, Melbourne, Australia and Trinity College, Dublin, Ireland. Professor Payne has a long track record in palliative care research and scholarship. Her research agenda focuses on palliative and end-of-life care for older people and bereavement support. She holds a number of major grants in these areas and has supervised over 20 PhD students. She teaches on research methods and has co-edited a textbook on research methods in palliative care. She is Director of the NCRI funded Cancer Experiences Collaborative. She is Vice President of the European Association of Palliative Care and president elect from 2011. Sheila has published widely in academic and
professional journals, written eleven books, and formerly edited (with Sandra Horn) the 'Health Psychology' book series published by the Open University Press. Contributors: Glennys Howarth, Professor, Faculty of Health, University of Plymouth, UK Barbara Hanratty, Senior Lecturer in Population and Community Health, University of Liverpool, UK Louise Holmes, Research Assistant, University of Liverpool, UK Anthony C. Gatrell, Dean, School of Health & Medicine, Lancaster University, UK May McCreaddie, Lecturer, Nursing and Midwifery, University of Stirling, UK Malcolm Payne, Adviser, Policy and Development, St Christopher's
Hospice, London, UK Heather Richardson, Clinical Director, St Joseph's Hospice, London, UK Jonathan Koffman, Senior Lecturer in Palliative Care, King's College London, Department of Palliative Care, Policy and Rehabilitation, Cicely Saunders Institute, London, UK Carol Thomas, Professor of Sociology, Division of Health Research, Lancaster University, UK Lukas Radbruch, President of the European Association for Palliative Medicine; Chair of Palliative Medicine, Department of Palliative Medicine, University Hospital Bonn, Germany Caroline Nicholson, Post Doctoral Research Fellow, National Nursing Research Unit, Florence Nightingale School of Nursing & Midwifery, King's College London, UK Jo Hockley, Nurse Consultant, St
Christopher's Hospice, London, UK Anne Grinyer, Director, PG Taught Schemes, Division of Health Research, School of Health & Medicine, Lancaster University, UK Irene Tuffrey-Wijne, Senior Research Fellow, St George's University of London, UK Max Henderson, Clinical Senior Lecturer in Epidemiological & Occupational Psychiatry, Institute of Psychiatry, Kings College London, UK Annabel Price, Clinical Lecturer in Palliative Care Liaison Psychiatry, Institute of Psychiatry, King's College London, UK Murna Downs, Head, Bradford Dementia Group, Division of Dementia Studies, School of Health Studies, University of Bradford, UK Louise Jones, Head, Marie Curie Palliative Care Research Unit, Research Department of Mental Health
Sciences, University College London, UK Regina McQuillan, Consultant in Palliative Medicine, St. Francis Hospice, Dublin, Ireland Nigel G. J. Dodds, Nurse Manager, St Christopher's Hospice, London, UK Chris Farnham, Consultant in Palliative Medicine, Hospice of St John and St Elizabeth, London, UK Katherine Cox, Integrative Therapist, Twickenham, UK Mary Turner, Research Fellow, Lancaster University, UK Orla Keegan, Head of Research, Irish Hospice Foundation, Dublin, Ireland Kelli I. Stajduhar, Associate Professor, School of Nursing and Centre on Ageing, University of Victoria, Canada Mike Richards, National Cancer Director, National Cancer Action Team, London, UK David Oliviere,
Director of Education and Training, St Christopher's Hospice, Sydenham, London; Visiting Professor, Middlesex University, London, UK Barbara Monroe, Chief Executive, St Christopher's Hospice, Sydenham, London; Honorary Professor, International Observatory on End of Life Care, Lancaster University, Lancaster, UK Sheila Payne, Director of the International Observatory on End of Life Care, and Help the Hospices Chair in Hospice Studies, Lancaster University, Lancaster; Director of the Cancer Experiences Collaborative, UK
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"Everyone who works with the care of these groups has something to learn from this book. Therefore, I recommend it to anyone interested in end of life care." - Journal of the Norwegain Medical Association " Death, Dying and the Social Difference lends itself to a 'dipping in and out' approach, making it the ideal for busy professionals. There is something for everyone whether ecperienced or new to palliative care, and it will be useful for an international palliative care audience, those interested in cultural and social differences, students of both medicine and nursing, and educationalists involved in teaching on death and dying programmes." - International Journal of Palliative Nursing "The book
illustrates well the diverse, multi-cultural, multi-faith and wide-ranging family structures in the UK today - as well as providing significant examples of social inequalities that may impinge on access to good quality palliative care." - St Christopher's Hospice
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Lukas Radbruch, President of the EAPC: Foreword
Part One
1: Barbara Monroe, David Oliviere, and Sheila Payne: Social differences - the challenge for palliative care
2: Glennys Howarth: The emergence of new forms of dying in contemporary societies
3: Barbara Hanratty and Louise Holmes: Social inequality in dying
4: Anthony C. Gatrell and Sheila Payne: Place and space: geographic perspectives on death and dying
5: May McCreaddie: Communication, information and support
6: Malcolm Payne: Poverty and finance
7: Heather Richardson and Jonathan Koffman: Embracing diversity at the end of life
8: Carol Thomas: Disability and the death and dying agenda
Part Two
9: Caroline Nicholson and Jo Hockley: Death and dying in older people
10: Malcolm Payne: Vulnerable adults and families
11: Anne Grinyer: Dying as a teenager or young person
12: Irene Tuffrey-Winje: People with intellectual disabilities
13: Max Henderson and Annabel Price: Mental health needs
14: Murna Downs: People with dementia
15: Louise Jones: Homeless people
16: Regina McQuillan: Travellers' death and dying
17: Nigel G. J. Dodds: Asylum seekers and refugees
18: Chris Farnham: Palliative care for substance abusers
19: Kelli I. Stajduhar: Family carers and social difference
20: Katherine Cox: Sexual orientation
21: Mary Turner and Sheila Payne: Palliative care for prisoners
22: Orla Keegan: Bereavement - a world of difference
Mike Richards: Afterword
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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