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Am I My Genes?
Confronting Fate and Family Secrets in the Age of Genetic Testing
Robert L. Klitzman, M.D.
352 pages
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235x156mm
978-0-19-983716-8
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Hardback
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15 March 2012
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- Explores the experiences of individuals confronting genetic disease, and the full impact of this predicament on their lives - from issues of identity and fate, to those of reproductive choices.
- Unlike prior studies in academic articles that have examined testing, disclosure, or reproduction separately, this book looks at these intertwined elements together.
- Draws from in-depth interviews with individuals confronting genetic testing issues, to explore these realms as they arise in daily life.
Genetic testing is rapidly spreading; every year dozens of new tests are developed which analyze our genetically inherited predisposition toward certain diseases. Companies have sprung up which will provide inexpensive online testing of your genetic profile via a simple cheek swab. This testing is also moving from analyzing a small portion of DNA to a person's entire genome. On the plus side, genetics is rapidly enhancing our understanding and treatment of disease, such as Huntington's, cystic fibrosis, sickle cell anemia, breast cancer, and Alzheimer's. Testing of infants and
pregnant mothers can detect disorders early, and the manipulation of genes in stem cells is helping to provide new treatments. Drugs are developed that are personalized for a specific individual's genetic profile. Genetics will likely be for the 21st century medicine what antibiotics was for the 20th.
For all the inevitable progress however, this knowledge presents ever new dilemmas for patients. Countless people wrestle with fear and apprehension about whether to get tested, and if so, what they should do with the information. In this volume, the psychiatrist Robert Klitzman explores how individuals confront these complex issues in their daily lives. He has interviewed a wide range of people who are at risk for various genetic diseases, and the volume collects
and reflects on their experiences grappling with quandaries like: whether to get tested; to whom to disclose their genetic risks (spouses, parents, employers); what treatments to pursue; whether to have children knowing that genetic diseases may be inherited; and whether or not our destiny is ultimately what is in our genes. These are difficult, complicated ethical and sometimes metaphysical questions that are also embedded in intricate social contexts — the family, the clinic, and the world at large. Klitzman's gripping presentation of the human face of these new technologies is important, useful, and ultimately compelling, since these patients are pioneers in whose path most of us will eventually follow.
"Genetics is increasingly important in science and society
- from solving crime, to extending our lives. Klitzman's book is an extraordinary exploration of this world, probing the many roles and implications of genetics in our lives today. With great intelligence and humanity, he recounts fascinating stories of how a wide range of women and men and their families face diseases from breast cancer to brain disorders, and confront issues that are among the most fundamental of our time. Filled with astonishing insights, this riveting book is vital reading for us all." - Paula Zahn
"Am I My Genes? focuses on some of the most critical ethical and medical issues of our time. Psychiatrist Robert Klitzman lucidly discusses the moral and psychological complexities that come in the wake of genetic testing—-the
possibilities, which are enormous; the anxieties and misunderstandings; the social, legal, and financial issues——and gives the reader insight into what we know and what we don't know. Am I My Genes is an important book for anyone who has the genes for pathology, which is all of us, and I recommend it highly." - Kay Redfield Jamison, Ph.D., Professor of Psychiatry, Johns Hopkins School of Medicine and author of An Unquiet Mind
"With his graceful prose and vivid examples, Robert Klitzman follows several dozen genetic 'pioneers'-people at risk of breast cancer, Huntington's and alpha-1-antitrypsin deficiency-through their struggles to understand what genetics means for them and their families. Am I My Genes? is an illuminating voyage through the medical, familial and
existential quandaries faced by those of us at genetic risk. Read the story of the woman who felt it necessary to steal pages from her medical record, and you will never look upon abstract debates over genetic discrimination the same way." - Thomas H. Murray, Ph.D. President and CEO, The Hastings Center
"In a book that is at once scholarly, comprehensive, and accessible, Dr. Klitzman brings his wisdom to the major issues that confront sufferers from disorders with a strong genetic underpinning. Klitzman and the men and women he interviews address the predicaments and moral dilemmas facing patients and families in an age of personalized medicine: whether to test, whom to tell, and how to integrate awareness of disease into the sense of self." - Peter D. Kramer, author
of Against Depression and Listening to Prozac
"Blending compassion and good science, Robert Klitzman proposes new guidelines for the morally complex questions of how we understand our genetics, and what we choose to do with the destiny they imply. His sensitive, humanist approach converts information into knowledge." - Andrew Solomon, author of Noonday DemonReadership: General public; Health care providers and students; students and scholars in such fields as: Law, Policy, Sociology (e.g., medical sociology, organizational sociology, sociology of work, sociology of science), Anthropology (e.g., medical anthropology); Psychology (e.g., clinical psychology, health psychology, decision-making),
History (e.g., oral history, history and philosophy of science,), Journalism, Creative non-fiction writing, Ethics (narrative medicine, doctor-patient relationships and relationships, professionalism).
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Robert L. Klitzman, M.D., Professor of Clinical Psychiatry, and Director of the Masters of Bioethics Program at Columbia University Robert Klitzman is a Professor of Clinical Psychiatry, and the Director of the Masters of Bioethics Program at Columbia University. He co-founded and for five years co-directed the Columbia University Center for Bioethics, and is the Director of the Ethics and Policy Core of the HIV Center. Author of When Doctors Become Patients, A Year-long Night: Tales of a Medical Internship, In a House of Dreams and Glass: Becoming a Psychiatrist, and other works.
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Part I: Introduction
Chapter I: Embarking on genetic journeys: Introduction
Part II: Genes in the family
Chapter II: "Do I want to know?": Testing decisions
Chapter III: "Whom should I tell?": Disclosures and testing in families
Part III: Genes in the mind: Understanding genetics
Chapter IV: Genetic test as Rorschach: Questions of "why me?"
Chapter V: "Am I my genes?": Genetic identities
Chapter VI: "Lightning doesn't strike twice": Myths and misunderstandings about genetics
Part IV: Genes in the clinic
Chapter VII: "What should I do about my genes?": Deciding on treatment
Chapter VIII: "Passing it on?": Reproductive choices
Chapter IX: "There's only privacy if you make it": Problems with privacy and insurance
Part V: Genes in the wider world
Chapter X: "Keep it in the family?": Other disclosures beyond kin
Chapter XI: "Crossing over": Entering genetic communities
Chapter XII: "Testing everyone?": Gene politics
Part VI: Conclusions
Chapter XIII: Genes in everyday life
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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