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Highly commended in the Popular Medicine Category of the BMA Book Awards 2009
The Invisible Smile
Living without facial expression
Jonathan Cole and Henrietta Spalding
256 pages
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234x156mm
978-0-19-856639-7
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Hardback
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30 October 2008
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- Provides first hand accounts of living without facial expression, allowing a completely new way of looking at ourselves
- Enables us to understand the crucial role of the face and facial expression in our social lives, identity and selfhood
- Underpinned by medical and neuroscience expertise, resulting in a scientifically credible volume
- The result of a 4 year collaboration between a clinician/neuroscientist and a teacher/lobbyist who lives with Moebius, providing an authenticity and immediacy often missing from such accounts
We are defined by our faces. They give identity but, equally importantly, reveal our moods and emotions through facial expression. So what happens when the face cannot move?
This book is about people who live with Möbius Syndrome, which has as its main feature an absence of movement of the muscles of facial expression from birth. People with Möbius cannot smile, frown, or look surprised or sad. Talking and eating are problematic, since their lips do not move. Even looking around is also difficult since the eyes
cannot move either.
The book is unique in giving those with Möbius a voice, allowing children and adults with the condition to explain what it is like. These fascinating biographies reveal much about the relations between face and facial expression, and emotional expression and emotional experience which we normally take for granted. The narratives also show the creative ways in which those with Möbius construct their lives and how they come to terms with and express their identities with, and yet, beyond their faces. Some with Möbius have been thought to have learning difficulties and autism, since an impassive immobile face has been assumed to reflect inner cognitive problems. This book criticises such work and asks people to look not only at the face but
beyond it to see the person.
Throughout the book, several themes emerge, of which perhaps the most surprising is the reduced emotional experience those with Möbius can have as children and young adults and the journeys they go on as they realise this and then assimilate emotion from the outside in.
The result of a 4 year collaboration between a clinician/neuroscientist and a teacher/lobbyist who lives with Möbius, 'The Invisible Smile' provides an authentic, personal, and moving account of this disorder.Readership: Psychologists (clinical, developmental, and those interested in emotion); neurologists; neuroscientists, educationalists, philosophers, those living
with Möbius and their friends and family
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Jonathan Cole, Consultant in Clinical Neurophysiology, Poole Hospital, Visiting Professor at CoPMRE, University of Bournemouth and Visiting Senior Lecturer, Clinical Neurosciences, University of Southampton, UK, and Henrietta Spalding, Head of Professional Development at 'Changing Faces', London, UK
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"We face people every daybut what if a rare congenital malady deprives a child of the power to smile or frown, to have any facial expression whatever? Dr Cole is an expert on this condition, and, along with Henrietta Spalding, who grew up with Möbius Syndrome herself, he presents the life stories of people with this neurological conditionand the varied ways in which they cope and adapt. Cole writes vividly, but with delicacy and sympathy, combining deeply personal portraits with pioneering scientific insight." - Oliver Sacks "Möbius Syndrome is a rare condition that deprives its victims of something we all take for granted: the ability to express our emotions through facial expression. It is important to know more about this
condition for human as well as scientific reasons. Jonathan Cole, who is the medical authority on Möbius, and Henrietta Spalding, who knows Möbius first hand, provide the best guide yet to the problem in a direct and readable text." - Antonio Damasio
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1: Introduction
2: Somebody home
3: Balancing acts
4: Cartesian children
5: Part of me
6: The spectator
7: Elastic between us
8: Hear my smile
9: 'Doomed to express'
10: Changing of the rules
11: Every second of the day
12: Not about anything
13: Rusty old car
14: The last why
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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