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Category winner at The Society of Authors and The Royal Society of Medicine Book Awards 2006
Children's Hospice Internationals Charles A. Corr Award for Literature
Oxford Textbook of Palliative Care for Children
Ann Goldman, Richard Hain, and Stephen Liben
674 pages
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4 pp colour plates, numerous halftones and line drawings
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276x219mm
978-0-19-852653-7
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Hardback
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26 January 2006
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- The first definitive textbook on the subject of paediatric palliative care
- Identifies the medical, psychological, practical and spiritual issues of caring for terminally ill children and their families
- Promotes a model of care that addresses the complex and multifaceted needs of children with life-threatening illnesses and their families
This book is the first authoritative, systematic and comprehensive text to define the increasingly important and evolving specialty of paediatric palliative care. It explores both the clinical aspects and the multidimensional and holistic nature of care for the dying child, based on the knowledge that all human experience has a physical, emotional, psychological and spiritual impact. The book covers ways of providing support in all of these areas both for the child, families, and carers, recognising the importance of teamwork and taking an evidence-based approach.
The Oxford Textbook of Palliative Care for Children is about the care of children for whom cure of their underlying disease is not possible. It encompasses the physical management of symptoms such as pain and nausea, as well as social issues such as accessing appropriate education and funding, emotional issues such as techniques for communication, and spiritual issues such as feelings of guilt and isolation.
The book suggests that if we are to maintain the quality of life for a child it is essential to recognise all these dimensions and try to address them. This can only be done by recognising the skills of a wide range of professionals and working together in ways that are not always intuitive to any one discipline. It explores the multidimensional
and holistic nature of care for the dying child. Those working in paediatric palliative care recognise that all human experience has emotional, psychological and spiritual impact as well as physical, and this book attempts to find ways of providing support in all these.Readership: Aimed primarily at palliative care physicians, trainees in palliative medicine and oncology, paediatric oncologists, specialist nurses, paediatricians, and hospice workers; this book will appeal to all those professionals who work closely with the care of dying children.
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Ann Goldman, Consultant in Paediatric Palliative Care, Great Ormond Street Hospital, London, UK and winner of the Children's Hospice International's Charles A. Corr Award for Literature, Richard Hain, Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Cardiff, UK, and Stephen Liben, Director, Palliative Care Program, The Montreal Children's Hospital, Canada Contributors:
Trygve Aasgaard, Associate Professor of Music Therapy, Oslo University College; The Norwegian Academy of Music, Norway
Thomas Attig, Professor Emeritus in Philosophy, Bowling Green State
University, USA
Nigel Ballantine, Specialist Clinical Pharmacist, Haematology Oncology, Birmingham Children's Hospital NHS Trust, Birmingham, UK
Muriel Barber, Care Manager, Claire House Children's Hospice, Wirral, UK
Sandra Bertman, Research Professor of Palliative Care, Boston College Graduate School of Social Work, USA
Myra Bluebond-Langner, Director of the Rutgers University Center for Children and Childhood Studies; Distinguished Professor of Anthropology, USA
Lynda Brook, Macmillan Consultant in Paediatric Palliative Care, Royal Liverpool Children's Hospital, Liverpool, UK
Erica Brown, Head of Research and Development, Acorns Children's Hospice, Birmingham, UK
John J Collins, Head, Pain and
Palliative Care Service, The Children's Hospital at Westmead, Sydney, Australia
Nancy Contro, Pediatric Palliative Care Program, Co-ordinator of Research, Lucile Packard Children's Hospital, Stanford University Medical Center, USA
David L Coulter, Assistant Professor of Neurology, Harvard Medical School, USA
Finella Craig, Palliative Care Consultant, Great Ormond Street Hospital, London, UK
Betty Davies, Professor and Chair, Department of Family Health Care Nursing, UCSF School of Nursing, San Francisco, USA
Dawn Davies, Pediatric Palliative Care Consultant, Assistant Professor, Department of Pediatrics, University of Alberta, Edmonton, Canada
Amy De Cicco, Research Program Co-ordinator, Rutgers, The State
University of New Jersey, USA
Jacqueline Denyer, Clinical Nurse Specialist, Epidermolysis Bullosa (Paediatric), Great Ormond Street Hospital for Children NHS Trust, London, UK
Debbie Devlaming, Pediatric Palliative Care Co-ordinator, Stollery Children's Hospital, Edmonton, Canada
Sister Frances Dominica, Founder and Chair of Trustees, Helen House; Douglas House, Oxford, UK
Gwynneth Down, Consultant Family Therapist, Great Ormond Street Hospital for Children, London, UK
Ross Drake, Paediatric Palliative Care Specialist, Starship Children's Hospital, Auckland, New Zealand
Veronica Dussel, Research Associate, Paediatric Advanced Care Team, Dana Farber Cancer Institute, Boston, USA
Nicola Eaton,
Director of Palliative Care Research, Centre for Child & Adolescent Health, Bristol, UK
Kate Faulkner, Project Director, New England Program of all-inclusive care for children and their families (BE PACC), USA
Linda M Ferguson, Professor of Nursing, University of Saskatchewan, Canada
Nicki Fitzmaurice, Paediatric Macmillan Nurse, Birmingham Children's Hospitals NHS Trust, Birmingham, UK
Susan Fowler-Kerry, Professor of Nursing, University of Saskatchewan, Saskatoon, Saskatchewan, Canada
Gerri Frager, Medical Director of Pediatric Palliative Care, IWK Health Centre; Assistant Professor, Dalhousie University, Halifax, Nova Scotia, Canada
Brother Francis of Worth Abbey, Clinical Nurse Specialist in Paediatric
Oncology and Related Palliative Care; Benedictine Monk, Worth Abbey, West Sussex, UK
Ann Goldman, Consultant in Paediatric Palliative Care, Great Ormond Street Hospital, London, UK
Robert Graham, Assistant in Critical Care Medicine, Department of Anesthesia; Assistant in General Practice, Department of Medicine, Children's Hospital, Boston, USA
Richard Hain, Senior Lecturer in Paediatric Palliative Care, University of Wales College of Medicine, Cardiff, UK
Jim Hammel, US-UK visiting Fulbright Scholar, Oxford University, School of Medicine, Oxford, UK
Chris Holden, Head of Department Clinical Nurse, Specialist Nutritional Care Department, Birmingham Children's Hospital NHS Trust, Birmingham, UK
Anne Hunt, Nurse
Researcher, Institute of Child Health, London; Research Fellow, Royal College of Nursing Institute, Oxford, UK
Jenny L Hynson, Consultant Paediatrician, Victorian Paediatric Palliative Care Program, Royal Children's Hospital, Melbourne, Australia
Satbir Singh Jassal, General Practitioner, Loughborough; Medical Director, Rainbow Children's Hospice, Loughborough; Macmillan General Practitioner Facilitator, UK
Marek W Karwacki, Senior Lecturer, Department of Palliative Care, National Research Institute for Mother and Child; Paediatrician Consultant, Warsaw Hospice for Children, Warsaw, Poland
Leora Kuttner, Clinical Professor, Pediatric Department, University of British Columbia & BC Children's Hospital, Vancouver, Canada
Vic Larcher, Consultant Paediatrician, Great Ormond Street Hospital, London, UK
Judith Leet, Writer, Massachusetts, USA
Simon Lenton, Consultant Community Paediatrician, Community Child Health Department, Bath, UK
Mary Lewis, Senior Nurse and Clinical Lead, The Lifetime Service, Bath & North East Somerset PCT, Bath; Research Associate, Centre for Child and Adolescent Health, University of the West of England, Bristol, UK
Stephen Liben, Director, Palliative Care Program, The Montreal Children's Hospital, Canada
Tom Lissauer, Consultant Neonatologist, St Mary's Hospital, London, UK
Anita MacDonald, Head of Research Dietetics, The Children's Hospital, Birmingham, UK
Erica J Mackie, Consultant Paediatric
Oncologist, Southampton General Hospital, UK
Renée McCulloch, Specialist Registrar in Paediatrics, John Radcliffe Hospital; Children's Hospice Doctor, Helen House Children's Hospice, Oxford, UK
Rodica Matusa, Romania
Marie-Louise Millard, Specialist Registrar, Paediatrics, St Mary's Hospital, Portsmouth, UK
Helen Prescott, Consultant Clinical Psychologist, Lifetime, Avon & Wiltshire Partnership NHS Trust, UK
Debbie Norval, Director of Training, Centre for Palliative Learning, Hospice Association of the Witwatersrand, Johannesburg, South Africa
B.A.M O'Hare, Locum Consultant Paediatrician, University Hospital of Wales, Cardiff, UK
Danai Papdatou, Professor of Psychology, Faculty of Nursing, University
of Athens, Greece
Michelle Rogers, Project Co-ordinator, Children's Memorial Hospital, Chicago, USA
Sarah Scofield, Relief Clinical Social Worker, Lucille Packard Children's Hospital at Stanford, USA
Harold Siden, Clinical Assistant Professor, Pediatric, University of British Columbia; Medical Director, Canuck Place Children's Hospice, Vancouver, Canada
Jean Simons, Assistant Director: Family Policy, Great Ormond Street Hospital for Children NHS Trust, London, UK
Jo Sims, Senior Nurse - Community Liaison, Rainbow Children's Hospice, Loughborough, UK
Barbara Sourkes, Associate Professor of Pediatrics and Psychiatry, Stanford University School of Medicine and Kriewall-Hoehl Director, Pediatric Palliative Care
Program, Lucile Packard Children's Hospital at Stanford, USA
David Southall, Professor of Paediatrics, University Hospital of North Staffordshire, UK
David M Steinhorn, Associate Professor of Pediatrics, Northwestern University Feinberg School of Medicine; Director, Judith N Bernstein Integrated Medicine Initiative, Children's Memorial Hospital, Chicago, IL, USA
Paul Thayer, Assistant Professor of Child Life and Family Studies, Wheelock College, Boston, USA
Angela Thompson, Associate Specialist, Paediatrics, North Warwickshire PCT, UK
Michael Towne, Child Life Specialist, UCSF Children's Hospital, San Francisco, USA
Janet Vickers, Nurse Consultant, Paediatric Palliative Care, Royal Liverpool Children's NHS Trust,
Liverpool, UK
Suellen Walker, Portex Department of Anaesthesia, Great Ormond Street Hospital, London, UK
Gillian Watterson, Paediatric Pain Fellow, Institute of Child Health, London, UK
Joanne Wolfe, Medical Director, Pediatric Advanced Care Team, Children's Hospital Boston & Dana Farber Cancer Institute; Assistant Professor of Pediatrics, Harvard Medical School, USA
Isabel Wood, Teacher, Canuck Place Children's Hospice, Vancouver, Canada
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"Following in the footsteps of the Oxford Textbook of Palliative Medicine, here is a comprehensive textbook covering all aspects of paediatric palliative care...The speciality of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed...Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children." - Roger Woodruff, Director of Palliative Care, Austin Health, Melbourne, Australia "...for the novice practitioner, this will allow one to build knowledge around the foundation of care, and will help the expert specialist practitioner to enhance and update
one's expertise. ... It is recommended that all paediatric palliative care specialist practitioners should have a copy." - Oncology News "The specialty of paediatric palliative care is barely 25 years old and this book is a testament to how far it has developed. ... Like its adult counterpart, this book will be the gold standard for paediatric palliative care and deserves a place in every department of paediatrics and hospices that care for children." - IAHPC Newsroom
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A. Foundations of care
1: Simon Lenton, Nicola Eaton, David Southall & Ann Goldman: Development & epidemiology
2: Jenny L Hynson: The child's journey
3: Gwynneth Down & Jean Simons: Communications
4: Vic Larcher: Ethics
B. Child and family care
5: Sandra Bertman & Judith Leet: Creative lens
6: Brother Francis: Spiritual life
7: Myra Bluebond-Langner & Amy DeCicco: Children's views on death
8: Barbara M Sourkes: Psychological impact of life-limiting conditions
9: Finella Craig: Adolescents and young adults
10: Trygve Aasgaard: Children expressing themselves
11: Isabel Wood: School
12: Nancy Contro & Sarah Scofield: Child and family assessment
13: Mary Lewis & Helen Prescott: Impact of life-limiting conditions on the family
14: Sister Frances Dominica: After the child's death
15: Betty Davies, Thomas Attig & Michael Towne: Bereavement
16: Erica Brown: Ritual and religion
C. Symptom care
17: Gerri Frager & John J Collins: Symptoms in life-limiting illness
18: Nigel Ballantine & Nicki Fitzmaurice: Using medications
19: John J Collins & Suellen Walker: Pain - an introduction
20: Anne Hunt: Pain - assessment
21: Ross Drake & Richard Hain: Pain - pharmacological management
22: Leora Kuttner: Pain - an integrative approach
23: Marek W Karwacki: Gastrointestinal symptoms
24: Angela Thompson, Anita MacDonald & Chris Holden: Feeding and nutrition
25: Renée McCulloch & Jim Hammel: Depression, anxiety and agitation
26: Kate W Faulkner, Paul B Thayer & David L Coulter: Neurological and neuromuscular symptoms
27: Stephen Liben, Richard Hain & Ann Goldman: Respiratory symptoms
28: Jacqueline Denyer, Gillian Watterson & Richard Hain: Skin symptoms
29: Erica Mackie & Marie-Louise Millard: Haematological symptoms
30: Debbie Norval, B A M O'Hare & Rodica Matusa: HIV and AIDS
31: David M Steinhorn & Michelle Rogers: Complementary and alternative medicine
32: Dawn Davies & Debbie de Vlaming: Symptom control at the end of life
D. Delivery of care
33: Satbir Singh Jassal & Jo Sims: Working as a team
34: Danai Papadatou: Healthcare providers' responses to the death of a child
35: Lynda Brook, Janet Vickers & Muriel Barber: Place of care
36: Stephen Liben & Tom Lissauer: Intensive care units
37: Ann Goldman, David Southall, Simon Lenton & Nicola Eaton: International aspects
38: Harold Siden: Quality assurance
39: Linda Ferguson, Susan Fowler-Kerry & Richard Hain: Education and training
40: Veronica Dussel, Robert Graham & Joanne Wolfe: Research
Appendices
1: Drug doses
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The specification in this catalogue, including without limitation price, format, extent, number of illustrations, and month of publication, was as accurate as possible at the time the catalogue was compiled. Occasionally, due to the nature of some contractual restrictions, we are unable to ship a specific product to a particular territory. Jacket images are provisional and liable to change before publication.
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